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Founders of The Maisie Moo Foundation

maisie and mum

The Maisie moo foundation was formed April 2015 By Kayleigh Llewellyn, Vanessa Llewellyn and there family and friends in memory of Maisie Llewellyn who died in May 2011 aged only 16 months having being diagnosed with Leukemia at just over 4 weeks old. To try to help the families of children with life threatening illnesses in Pembrokeshire.

Maisie’s Story

Maisie Llewellyn was born on 2nd January 2010 at Withybush Hospital Haverfordwest. A few days later Kayleigh came home with Maisie.

After about 2 weeks Kayleigh thought Maisie was not well and took her to the doctors and he assured her that she was fine. Over the next 2 weeks Kayleigh still was not happy with Maisie and took her to the doctors several times and kept saying this to her health visitor. Then a different health visitor sore Maisie and suggested to take her to the children’s ward at Withybush Hospital to be checked over.

There she was given some blood tests when the tests came back they informed us that a consultant needed to give us the results. When he did Aged at only 4 weeks we were told that Maisie had been diagnosed with Leukemia and would be transferred to the Children’s Hospital of Wales in Cardiff.
Maisie then started a course of chemotherapy which lasted for several months this did do its job and there was no sign of the Leukemia the next stage was to be a bone marrow transplant and match was found.

She had the transplant at Bristol Children’s Hospital in August 2010 which went well and was a success she then went back to Cardiff for a couple of months finally coming home just before Christmas and her first birthday. We had a fantastic Christmas with her home and then celebrated her first birthday.

Maisie had to go back to Cardiff every couple for weeks for checkups this all looked good until the beginning of April when the tests showed that the Leukemia had returned. We then had to meet the consultant who gave us the devastating news that there was nothing else that could be done to help Maisie.

Maisie lost her battle with Leukemia and fell asleep on 26th may 2011 at the age of only 16 months.