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Founders of The Maisie Moo Foundation

maisie and mum

The Maisie Moo Foundation was formed in April 2015 by Kayleigh Llewellyn, Vanessa Llewellyn and their family and friends in memory of Maisie Llewellyn who died in May 2011 aged only 16 months after being diagnosed with Leukemia at just over 4 weeks old. The aim of the Foundation is to try and help the families of children with life threatening illnesses in Pembrokeshire.

Maisie’s Story

Maisie Llewellyn was born on 2nd January 2010 at Withybush Hospital Haverfordwest.

After roughly 2 weeks of being home Kayleigh thought Maisie was not well and took her to the doctors and he assured her that Maisie was fine. Over the next 2 weeks Kayleigh was still not happy and could tell Maisie was not well so took her back to the doctors several times and also discussed it with her Health Visitor. One day at a Health Visitor appointment they were seen by a different one not the one they had previously seen and after Kayleigh raised her concerns the Health Visitor suggested she take Maisie to the Children’s Ward at Withybush Hospital to get her checked over.

Maisie was 4 weeks old at this point, at the hospital she was given blood tests and Kayleigh and the family were informed that a consultant would be given them the results of the tests. After speaking to the consultant Kayleigh and the family were told that Maisie had been diagnosed with Leukemia and would need to be transferred to the Children’s Hospital of Wales in Cardiff.

The next step for Maisie then was to start a course of chemotherapy, this lasted for several months but it did do its job and after having tests done, there was no sign of the Leukemia, there was one more thing that needed to take place and that was a bane marrow transplant and thankfully a match was found.

Maisie has a successful transplant at the Bristol Children’s Hospital in August 2010 and then she was sent back to the Cardiff Hospital where she stayed for a couple of months. She was finally aloud to go home just before Christmas and her first birthday, all of the family had a lovely Christmas and were so happy to have Maisie home and then in January they celebrated her 1st birthday.

Every couple of weeks Maisie had to go back to the Cardiff hospital to have check-ups and for a while everything looked good, then in April the tests showed that the Leukemia had returned, after meeting with the consultant Kayleigh and the family were given the devastating news that there was nothing else that could be done to help Maisie.

Maisie lost her battle with Leukemia and fell asleep on 26th may 2011 at the age of only 16 months.